Muscle twitching (known as fasciculation) can happen with MND, but for other reasons too, such as tiredness, stress, viral infection or general ill health. They gave nothing away although I fired questions at all of them. So after they didn't go away I went to the GP and the GP examined me and then he said that it was nothing to worry about and but I was still worried about it, about it, so I went back again. He referred me to a neurologist and I waited from February until April 2000 for an appointment. It might have been the menopause, something like that. Considering I was pregnant I think a two month wait was unacceptable although in my case it didn't make any difference because my form of MND isn't hereditary. One man whose brother had died of MND did not yet know it was the inherited form, and his symptoms were quite different to his brother's, so a connection was not made straight away. But you know, the speed how they work is - I went to Poland in August - September. But he did say that he'd make an appointment for me to see the neurologist. And he gave me a tape of what he said. But at the time I just thought I was getting old, even though I was only 49. There's no cure for MND, but there are treatments to help reduce the impact it has on a person's daily life. In PLS, legs, hands or speech can be affected, as well as sense of steadiness in walking, and in PMA it is usually hands or legs. And they didn't give me long to rest afterwards before I was kicked out [laughs]. So she took lots of blood tests and they took a while to come back. Several people talked about their tests as a 'process of elimination'. They were both of 10k, and one of them I remember was in the May and it was 10k. They ran the electric currents through me. About 1 in 10 people with FTD will also develop motor neurone disease. Motor neurone disease (MND) is an uncommon condition that affects the brain and nerves. And again it was the normal sequence of timings et cetera, and they then carried out some tests on me. She wouldn't tell me why but I knew it must be serious from her haste. See your GP, who can refer you for tests to rule out other causes if needed. I don't think it would have made a scrap of difference whether I had known at the beginning or not, and I think possibly psychologically they were all right. It is also known as amyotrophic lateral sclerosis or ALS. Also known … My balance was going. That is enough of that. And so off I went to a conference for SMA, because I thought, 'Well, if I am going to have this, I want to know about it.' Swallowing is becoming difficult and I often cough when eating and drinking. We talked to the consultant concerned who was, who was terrific always through this and he actually re-worded a letter, more positively in the sense that it, he said that it is a form of motor neurone, but they didn't know what it was and how long it would last. In addition, the early symptoms can be quite mild and could be caused by various other conditions. I went to Poland, I spoke to someone. They say, 'Yes, tomorrow.' I had ALS and it was standard. I'd been waiting for MRI test here of the spine. Registered in England. Could this be a symptom of MND. Because she knew I was worried about it and she thought he'd say I haven't got it. And then eventually I had an EMG in the June, and the consultant there wasn't terribly talkative. Some people do experience changes to thinking, emotions and behaviour with MND. It's one of the reasons Clarrie - who lost two relatives in the fatal fire - wasn't shocked when news emerged last week that experts had found chemicals which meant residents could be at risk of serious health conditions, including cancer and asthma. The MND Association has worked with The Royal College of General Practitioners (RCGP) to assist early diagnosis of MND. And I had to go and see her again, and she said the blood tests hadn't shown anything. He said, 'I don't know,' he said, 'could go either way, I don't know.'. Sit down.' This is a cyst on your spinal cord, and we think this is causing the damage.' And well, he just more or less said, 'Some people do. We were waiting for our lift to come along. So in January I went back and she decided that what she thought I must have was a fairly unusual form of motor neurone disease, which she called progressive muscular atrophy. That is enough of that. Motor Neuron Diseases . It was about half an hour, 45 minutes. Period or length then my legs looks thinner than the other, X-rayed... Gradually getting worse. ' I 'd be now, I wish he said... Negative thoughts in my hands, feet and limbs, is it not the! Kept on stressing you wo n't die with SMA got a diagnosis of MND not like the and. Are several conditions which cause this type of MND tend to start viewing messages select. 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